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Alec’s Light: The Boy Who Turned Fragility Into Strength.

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On May 2, 2002, in a Chicago hospital room filled with equal parts hope and fear, a baby boy came into the world already carrying more battles than most people face in a lifetime. His name was Alec, and before he ever took his first breath, doctors knew his life would not be an easy one.

He had osteogenesis imperfecta — brittle bone disease — a rare genetic disorder that makes bones so fragile they can break from even the smallest movement. Some babies with OI fracture bones during birth. Some break bones simply by rolling over. Many never walk, run, or play without fear.

By the time Alec reached childhood, he had already endured dozens of fractures.
By adulthood, more than 60.

But from the beginning, Alec showed the world something extraordinary:

Fragility is not the same as weakness.
And strength is not always something you can see.

Alec Cabacungan, spokesperson for Shriners Hospital for Children, is proud  to bring awareness to all - Happenings Magazine

A childhood shaped by courage

While other children ran across playgrounds, Alec learned to navigate casts, wheelchairs, doctor visits, and endless medical tests. His childhood was filled with reminders of what he couldn’t do — but he chose instead to focus on what he could.

He learned how to laugh through pain.
He learned how to fall and get back up — even when getting back up meant doing so in a different way than others.
And he learned something most adults never fully understand:

That a life can be meaningful, powerful, and full of joy even when it doesn’t follow the path you expected.

When Alec was still very young, his family turned to Shriners Hospitals for Children, a place known not only for its medical expertise, but for giving kids with disabilities the chance to thrive without limits. For Alec, it became more than a hospital.

It became a home for hope.

A face that changed everything

Alec Cabacungan, Shriners hospitals TV spokesman: Giving back to Shriners  hospitals means giving hope to kids like him - Chicago Sun-Times

At around 12 years old, Alec began appearing in Shriners’ TV spots — warm, funny, confident, and impossibly charismatic. His smile was contagious. His spirit lit up the screen. People who had never even heard of osteogenesis imperfecta suddenly knew Alec by name.

And something incredible happened.

Donations skyrocketed.

Families who could not afford lifesaving care found help because the nation had fallen in love with the brave boy with the bright eyes and the unbreakable spirit.

Alec wasn’t just a patient anymore.
He was a symbol.
A reminder that illness does not diminish worth — it magnifies courage.

Thousands of children received wheelchairs, surgeries, therapy, and medical support because of the awareness he helped raise. And Alec carried this responsibility with humility, always insisting:

“I’m just grateful I can help.”

A young man steps into his future

But Alec’s story didn’t stop at childhood.

This summer, at just 22 years old, he rolled across a stage many thought he’d never reach — graduating from Northwestern University, one of the top schools in the country, with a degree in journalism.

Photos of him receiving his diploma went viral — not because of pity, but because his joy was radiant. Because here was a young man who had broken dozens of bones… yet never let anything break his will.

Northwestern wasn’t easy.
Navigating campus in a wheelchair wasn’t easy.
Balancing medical challenges with demanding coursework wasn’t easy.

But Alec did it anyway.

And along the way, he pushed for better accessibility — not for himself alone, but for every student who would come after him. He spoke up in meetings, wrote letters, raised awareness, and made sure his university understood that accessibility is not a luxury — it is a right.

Finding his voice — and using it

Walking the red carpet?!? Not me 😁♿️ #NFLDraft

Alec’s dream has always been clear: to become a sports broadcaster.

Sports were his first love — especially Chicago sports. He knew players, stats, histories, and games the way musicians know notes. He took that passion into the real world, interning with WISN-TV, with the Indiana Pacers, and appearing on major broadcasts like Inside the NBA and the NCAA Final Four.

Each time he appeared on national television, viewers saw more than a young man with a disability. They saw talent. Humor. Intelligence. Presence.

They saw a broadcaster in the making.

Alec doesn’t want sympathy.
He wants a microphone.
And he has earned it.

The boy who became a hero without meaning to

Alec lives in Oak Park, Illinois, surrounded by the joyful chaos of four sisters who cheer him on and tease him in equal measure. He is grounded, grateful, and as humble as the day he began his journey.

He has never asked to be called inspirational.
He has never tried to be extraordinary.

He simply lives with intention — and the world notices.

What makes Alec remarkable is not just the fractures he has endured, but the kindness he radiates, the advocacy he champions, and the hope he spreads to families who receive a diagnosis they fear they cannot face.

Parents of newborns with osteogenesis imperfecta have written to him countless times saying, “Because of you, I believe my child can still have a full life.”

And Alec always sends back encouragement — because he remembers being that child. He remembers wishing someone would show him what was possible.

Now he is the someone.

A legacy already forming

At just 22 years old, Alec has already:

  • Helped raise millions for children in need

  • Inspired a generation of young patients

  • Advocated for accessibility and inclusion

  • Built a foundation for a promising broadcasting career

  • Proven that disability does not define destiny

He has done more in two decades than many do in a lifetime — all while living in a body that has given him more pain than most of us could imagine.

And still, he smiles.
Still, he dreams.
Still, he rises.

Why we tell his story

We share Alec’s journey not out of pity, but out of reverence.

Because some people don’t just face adversity —
they transform it.

Some don’t just survive challenges —
they lift others as they rise.

Alec is one of those rare souls who shine from the inside out, turning their wounds into wisdom and their obstacles into opportunities.

He reminds us that life is not measured by the fragility of our bones, but by the strength of our spirit.

And in that measure, Alec is unbreakable.

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